Thursday, October 29, 2009

For a Moment, I Thought This Was Settled

OH MY GOSH!!! You have got to be kidding me. I got a call yesterday from my ob/gyn's office saying she had written orders for a bi-lateral breast MRI, and to call them back to schedule.

I did that this morning and was told the nurse wanted to talk over some more things with the doctor, and she would call me back this afternoon.

When she called, she asked how I was doing, and, with that uncharacteristic pleasantry, I knew something was up.

She said the ob/gyn is turning this over to my onc to schedule. I asked what that means for me going forward. She had no answer.

I know the answer: it will continue to be a fight to get both tests arranged, and the farther out from diagnosis I am, the less compelling my need for both tests will seem--to everyone except me.

When I asked the question about who's handling this going forward of my onc's nurse, she said she thought I'd be happy they're making this easy for me.

What's easy about working to get this all with one dr--my ob/gyn--for over a week and still having it split between two?

My ob/gyn's office says they need "guidelines from the onc." But they didn't say they would take over handling this once they have those. And, when my onc's nurse called to make my day, she didn't say they were providing guidelines to the onc so she could do it all in the future.

So--I told the onc's nurse to get my onc and my ob/gyn to work together on this, come up with a yearly plan and decide who's going to run it all. I also said if either one isn't on board to please ask the two of them to find me doctors who will work together to get this done.

It can't be right that I would have to start from scratch and have to make months-out appointments to find doctors who will make this work.

I'll keep you posted.

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